Teenage and Young Adult Cancer Top 10
- What psychological support package improves psychological well-being, social functioning and mental health during and after treatment?
- What interventions, including self-care, can reduce or reverse adverse short and long-term effects of cancer treatment?
- What are the best strategies to improve access to clinical trials?
- What GP or young person strategies, such as awareness campaigns and education, improve early diagnosis for young people with suspected cancer?
- What are the best ways of supporting a young person who has incurable cancer?
- What are the most effective strategies to ensure that young people who are treated outside of a young person’s Principal Treatment Centre receive appropriate practical and emotional support?
- What interventions are most effective in supporting young people when returning to education or work?
- How can parents/carers/siblings/partners be best supported following the death of a young person with cancer?
- What is the best method of follow-up and timing which causes the least psychological and physical harm, while ensuring relapse/complications are detected early?
- What targeted treatments are effective and have fewer short and long-term side-effects?
The remaining questions discussed at the workshop were (in no order of priority):
- What are the long term physical effects of a cancer diagnosis and treatment and how long do they last?
- What factors affect the time to diagnosis and what outcomes are affected?
- What can young people do to help their recovery after chemotherapy or radiotherapy?
- What key factors (both cancer and individual) determine whether a treatment plan for children or adults will give better outcomes?
- What are the best ways to support young people getting back to 'everyday' life after treatment?
- How common is psychological distress and/or mental health problems in young people following treatment?
- What is the most effective way of supporting young people with relapsed cancer?
- What are the factors that should determine stopping treatment when the young person cannot be cured?
- What are the factors that predict life threatening chemotherapy side effects?
- At the end of treatment and during long term follow up, what support services improve psychological well-being, social functioning and mental health?
- For young people with incurable cancer, what methods, techniques or strategies for communication can help them to talk with their family and friends about their situation?
- What are the most effective strategies for engaging primary care professionals (e.g. GPs) to listen to young people?
- What interventions are most effective in supporting young people who are experiencing fatigue/tiredness when returning to work or education?
- What is the best treatment for brain cancers to increase survival and decrease toxicity?
- What causes problems with cognitive functioning (chemobrain), how long do they last and what are the most effective treatments and strategies?
- What are the best strategies for detecting and treating second primary cancers early?
- For young people with incurable cancer, how should healthcare professionals communicate with them to improve quality of life and patient experience?
- What are the long-term physical effects of stem cell transplants, how long do they last and how could they be reduced?
- For young people with incurable cancer, how should parents/carers communicate with them to improve quality of life and experience?
- What are the support needs of the family following the death of a young person with cancer?
For full details of all of the questions identified and the methods used to check them, please see the documents below.