Chapter 11: Follow up
Following up with the JLA
After the final workshop, the JLA is keen to receive feedback from Priority Setting Partnerships (PSPs) about their view of the process, methods, results and costs. The JLA will sent a short feedback questionnaire and PSP Leads are encouraged to complete this and to pass it on to other members of the Steering Group so that they can feed their comments back directly to the JLA. We would like to hear from both patient, carer and clinician Steering Group members. The questionnaire gives an opportunity for PSPs to comment on the JLA process, which will help to inform future development work for the JLA. The JLA team is keen to hear all views – good or bad.
The JLA recognises that assessing the value and impact of a PSP is challenging. It can take a long time to go from identification of a priority to starting funded research, and even longer for that research to report its outcomes. Any researcher, anywhere in the world, may start a project because of the PSP priorities and may not report this back to the PSP or the JLA. It is worth considering who will be able to keep this follow-up going on behalf of the PSP.
The JLA is nevertheless interested in reflecting on what difference the PSP has made in the long term. It is interested in how PSPs can track the impact of their process and publishes reports from PSPs that have been doing this. This includes reports from the Sight Loss and Vision PSP and the Autism PSP reviewing the impact of their PSPs one year after completion and a report from the Tinnitus PSP over five years after completion.
The JLA’s website shows information about funded research that has happened as a direct result of PSPs and other ways in which PSPs have had an impact so please keep the JLA team updated when you find out about this.