Prioritising Retention in Randomised Trials
This project, established in late 2017, aims to collect information from people across the UK and Ireland who are, or have been, involved directly, in designing, running, analysing, or taking part and/or staying involved in randomised trials (see below for an explanation of what trials are).
Most trials collect data from participants as part of their continued involvement in the trial and will help to answer whether one treatment is better than another. This is known as “follow-up”. Some trials collect data long after the treatments being tested have been given.
Retention refers to the number of people staying involved or “followed up” in trials and whether they complete or provide all the measurements the trial team needs. For example, the trial may ask participants to return for a study visit or return a questionnaire. This is important because if people join a trial but cannot be followed up, the trial results may be inaccurate and misleading which wastes vital research time and money.
Your help with this can help improve what we know about the best ways to encourage people to stay involved in clinical trials.
A shortlist of the questions about methods of retention to clinical trials that were collected in will soon be discussed at a priority setting workshop where their final order of priority will be agreed by members of the public involved in trials, carers, health professionals and researchers. Please check back here later in the autumn for more information about this.
Katie Gillies talks about PRioRiTy II