Inflammatory Bowel Disease (Australia) (priority setting in association with the JLA)

Inflammatory bowel disease (IBD) is a medical term that describes a group of conditions in which the gastrointestinal tract (gut) becomes inflamed (red and swollen). Two major types of IBD are Crohn’s disease and ulcerative colitis which are Iife-long gastrointestinal disorders that can present themselves in children, adolescents and adulthood. The relapsing and chronic nature of the disorder has broader impacts on a person’s emotional, physical and social wellbeing.

More than 100,000 Australians live with these conditions, with numbers expected to increase. The conditions are becoming more prevalent, more severe and more complex and are being diagnosed in more and more very young patients.

Crohn’s & Colitis Australia worked in collaboration with the James Lind Alliance to identify the Top 10 research priorities of people with IBD, carers and healthcare professionals. 

The Inflammatory Bowel Disease (Australia) Top 10 was published in May 2022.

Key documents

Inflammatory Bowel Disease (IBD) (Australia) Research Priorities Project (RPP) protocol

Inflammatory Bowel Disease (IBD) (Australia) Research Priorities Project (RPP) Question Verification Form

Inflammatory Bowel Disease (IBD) (Australia) Research Priorities Project (RPP) Engagement Summary