JLA Advisers

James Lind Alliance (JLA) Advisers are independent consultants who support and guide PSPs as neutral facilitators, to make sure that the process is followed in a fair and transparent way.  They ensure equal input from the perspectives of patients, carers and clinicians.

PSP Steering Groups are chaired independently by a JLA Adviser throughout the 12-18 month life of the PSP.  Advisers are recruited, approved and trained by the JLA.  They are paid directly by individual Priority Setting Partnerships (PSPs).

Meet the team

Katherine Cowan, Senior Adviser Katherine Cowan

Katherine is Senior Adviser to the JLA and has been a key contributor to the development of its methods and profile since 2008. Katherine co-wrote and edited the original JLA Guidebook. She has chaired over 20 PSPs and facilitated at more than 30 priority setting workshops. She is passionate about the JLA method and its potential to bring disparate and often seldom-heard groups together to influence the research agenda.

Katherine’s professional background is in social research and she has a particular interest in public participation and inclusion. She has a Masters in Coaching and Mentoring Practice and has worked as an independent consultant for eight years. Katherine is based in St Leonards-on-Sea and her hobbies include knitting and target sports. For more information and a list of publications, visit Katherine's website.

Toto Anne Gronlund TotoPhoto

Toto holds to heart values of openness, honesty and mutual respect. Toto is committed to creating opportunities for the expertise of the self to emerge, adopting the value of co-creation, for a more sustainable health and care system.

Toto brings over 30 years of experience in health, social care and the voluntary sector. She has recently retired from the NHS, having worked in citizen and clinical involvement, health Informatics, evaluation and health economics. In the voluntary sector she has held roles as a Trustee and facilitator and mentor. Most rewarding was helping groups to use participative evaluation to develop and value their work and their members. Toto started her NHS career as a Hospital Medical Physicist, working in research into non-invasive diagnostics.

As part of lifelong learning Toto completed a diploma in International Primary Care Research at UCL, specialising in the use of the narrative in health research, care and education.

Toto also spends plenty of time with family and friends, and takes to the hills, cycles and keeps bees.

Tricia Ellis PatriciaEllisPhoto

Tricia has worked in research related environments throughout her career. From her first post as a research and development physicist in a government laboratory, she has moved through consultancy, research funding, training and mentoring, governance and management. With academic qualifications in both natural and social sciences she has worked across national and regional government, the NHS and academia as well as the charity and private sectors.

In her most recent posts with the NIHR Clinical Research Network, she established and developed the NIHR Primary Care Research Network and as Divisional Director for Research Delivery had oversight of the delivery and performance of a large portfolio of clinical research studies covering ageing, dermatology, health services research, musculoskeletal disorders, oral and dental health, primary care and public health.

Maryrose Tarpey Maryrose Tarpey

Maryrose is a freelance consultant on research design and priority setting, ethics and analysis of research management data. Until February 2016 she was Assistant Director at INVOLVE Coordinating Centre, part of the National Institute for Health Research, where she led on policy and evidence on public involvement in health and social care research. She has worked in academia and for voluntary sector organisations as a researcher, trainer and evaluator of health and welfare provision. Her qualifications include a social science degree and post graduate diploma in public services evaluation.
 
She has chaired and facilitated meetings on a wide range of topics involving people with different perspectives. She is skilled at including users of research - patients, carers, community groups, clinicians, practitioners and service providers - in her work. Through INVOLVE, which was a JLA founding partner, Maryrose has supported the JLA approach since the foundation of the James Lind Alliance in 2004. She joined the JLA team as an adviser in April 2016. 

Sheela Upadhyaya Sheela Upadhyaya

Sheela is an NHS manager with over 17 years of experience in both the delivery of services in the acute setting and the commissioning of highly specialised services for rare and ultra-rare conditions. She has a strong focus on the people who matter in the NHS – patients. She uses her skills and natural affinity for working with a diverse range of people to obtain the best outcomes for them in a shared collaborative way.

She is an experienced facilitator and mentor, and has the ability to work transparently, harmonising stakeholder’s objectives, including clinicians and patient groups, to deliver recognisable outcomes. She utilises her extensive network of service providers, clinical experts and patient groups to engage with and deliver challenging and difficult projects.

Sheela currently supports a number of JLA PSPs as an adviser and uses this platform to learn more about different conditions and diseases.

Catherine White Catherine White

Catherine initially worked as a Charity Manager and she became involved in the health sector through voluntary work. Since 2007 she has volunteered for ICUsteps, the Intensive Care patient and relative support charity, and is currently the Information Manager and a Trustee for the charity. Catherine has a thorough understanding of all stages of research through participating as a lay co-applicant and a member of the trial steering committee on intensive care research trials, as well as through her role as a NIHR Clinical Evaluation and Trials funding board member.  She has also participated in other strategic health work, such as NICE Guideline and Quality Standard development.

She joined the JLA in 2016 and enjoys the opportunity to work with patients, relatives and healthcare professionals and helping their voices to be heard in the research community.