TranslatePriority 13 from the Mitochondrial Disease PSP
| UNCERTAINTY: What can prevent mitochondrial disease from getting worse over time? (JLA PSP Priority 13) | |
|---|---|
| Overall ranking | 13 |
| JLA question ID | 0095/13 |
| Explanatory note | Not available |
| Evidence |
None identified |
| Health Research Classification System category | Metabolic and Endocrine |
| Extra information provided by this PSP | |
|---|---|
| Original uncertainty examples | treatments to prevent progression/ 2nd eye involvement. ~ Progression as it's the most under researched ~ What is the role of exercise in preventing decline in vision in patients affected by vision loss with LHON? ~ What speeds up or slows down progression ~ Can adult onset MiTo disease (after some progression) improve and symptoms disappear with good management and care? ~ What can We do to slow progression ~ Anything to limit the condition or improve any longevity would be of interest ~ Also how it has progressed and whether anything can be done to slow progression. |
| Submitted by | 14 x Carers, 7 x Healthcare Professionals, 7 x Patients |
| PSP information | |
|---|---|
| PSP unique ID | 0095 |
| PSP name | Mitochondrial Disease |
| Total number of uncertainties identified by this PSP. | 42 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website) |
| Date of priority setting workshop | 19 January 2020 |
