News and publications
27 April 2016The PReSUTINeB study is now live, addressing the number four priority from the Spinal Cord Injury Priority Setting Partnership. By taking part, patients will be helping to improve understanding of Urinary Tract Infections and inform future treatment of this debilitating condition.
27 April 2016We’re delighted to announce that three new James Lind Alliance (JLA) Advisers have recently joined the team to help us work with the growing number of Priority Setting Partnerships (PSPs).
Healthtalk and the Oxford Health Experiences Research Group archive as a source of treatment uncertainties and research questions
21 April 2016Many readers will already be familiar with the work of the University of Oxford Health Experiences Research Group (HERG) in conducting narrative research into people’s experiences of health and illness.
04 March 2016The JLA Guidebook has been fully updated. Published in February 2016, Version 6 of the Guidebook has been condensed and revised to take account of learning from Priority Setting Partnerships (PSPs) over the last few years.
03 March 2016Leanne Metcalf has been a JLA Adviser since 2013 and has been involved in thirteen different PSPs, either chairing them or helping to facilitate their final workshops.
18 January 2016A new Contraception Priority Setting Partnership has begun its process to create a Top 10 priority list of research uncertainties, put together by patients, their partners and clinicians.
15 January 2016One year ago today (15th January 2015), Marie Curie published the results of the Palliative and end of life care Priority Setting Partnership at the Palliative and end of life Care Research Summit in London.
03 December 2015We’re pleased to announce that the JLA is seeking an additional JLA Adviser to ensure that the growing demand for JLA Priority Setting Partnerships (PSPs) can be met.
17 November 2015A new Priority Setting Partnership (PSP) survey has opened, giving everyone affected by miscarriage and recurrent miscarriage the chance to submit their unanswered questions about the condition.
13 November 2015Autistica, as the UK’s largest autism research charity, is leading on the Autism PSP. We launched our consultation in May of this year and have since closed the survey, satisfied that responses adequately represented all key target groups.
10 November 2015This important process raises awareness about hair loss disorders and provides a positive direction for hair loss research, helping address the needs of the patients and the people who look after them.
06 November 2015The Womb Cancer PSP completed an on line survey at the end of May 2015 receiving nearly 800 responses from approximately 380 participants, of whom approximately half were patients or carers.
27 October 2015Marie Curie is launching its largest ever research call today in partnership with the Scottish Government Chief Scientist Office (CSO) and the Motor Neurone Disease Association (MND Association), totalling £1,425,000.
15 October 2015Hearing loss has a significant impact on interpersonal communication, psychological well-being, quality of life and economic independence (Olusanya et al, 2014).
14 October 2015In November 2014, the Hair loss PSP, funded by Alopecia UK and initiated by the British Hair and Nail Society, closed its initial on-line survey. We had 912 survey responders – 81 percent were completed by patients, or carers, and 12.6 percent by healthcare professionals or organisations.