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JLA articles and publications

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PSP final reports

Incontinence: the taboo hurting the dignity and health of millions

Patients, carers and clinicians have highlighted continence issues as being important across James Lind Alliance Priority Setting Partnerships (PSPs) in Parkinson’s, Palliative and end of life care, Inflammatory Bowel Disease, Dementia and MS.

Published: 07 September 2018

Digital Technology for Mental Health: reaching out to people

The Digital Technology for Mental Health JLA PSP used a variety of methods to gather uncertainties from all the types of people it thought it was important to hear from. The PSP realised that using an online survey would not suit everyone.

Published: 31 August 2018

Making sure your research priorities are built on diversity

When we set out to find the top 10 priorities for Type 2 diabetes research, we wanted to make sure they represented everyone affected by the condition. In particular, people from Black, Asian and minority ethnic (BAME) communities, who are two to four times more likely to develop the condition.

Published: 19 December 2017

Breathing exercises help asthma patients with quality of life – first PSP research study funded by the NIHR HTA Programme announces its results

The first JLA PSP to announce its Top 10 priorities for future research was in Asthma in March 2007. One of the questions that patients, carers and health professionals jointly agreed that they wanted future research to tell us more about was “What are the benefits of breathing exercises as a form of physical therapy for asthma?”

Published: 14 December 2017

Type 2 Diabetes PSP: reflections from Steering Group members

The Type 2 Diabetes Priority Setting Partnership (T2D PSP) has just announced its top 10 priorities. With input from over 4000 people who submitted over 8000 ideas for research, this has been one of the JLA’s larger PSPs. As their involvement on the project comes to an end, Steering Group members reflect on the experience from their individual perspectives.

Published: 08 November 2017

The curious thing about research...

Douglas Findlay, Steering Group member, Emergency Medicine Priority Setting Partnership, looks back over the course of the priority setting process he was a part of. He explains why he believes the work of the James Lind Alliance is so valuable, and why he would encourage others to get involved.

Published: 13 September 2017

Adapting PSP surveys and workshops to make sure everyone can get involved

It’s important that Priority Setting Partnerships (PSPs) think about the people they are trying to talk to and how to make it as easy as possible for them to get involved. The Canadian Dementia PSP has announced its Top 10 recently and made some interesting adjustments to help people with a diagnosis of dementia to join in with the priority setting.

Published: 31 July 2017

Getting involved in a PSP workshop: from both sides of the window

Emily Burns, Research Communications Manager at Diabetes UK, reflects on her experience as a participant in the Contraception PSP Final Workshop. Emily describes the process, and relates this to her work with the Type 2 Diabetes PSP, which is currently planning its own final workshop.

Published: 14 June 2017