News and publications

Patients, carers and clinicians have highlighted continence issues as being important across James Lind Alliance Priority Setting Partnerships (PSPs) in Parkinson’s, Palliative and end of life care, Inflammatory Bowel Disease, Dementia and MS.

The Digital Technology for Mental Health JLA PSP used a variety of methods to gather uncertainties from all the types of people it thought it was important to hear from. The PSP realised that using an online survey would not suit everyone.

The charity Autistica completed its PSP looking at research priorities from all those who know and understand Autism in May 2016. Since then, Autistica has set about funding researchers in the UK to help provide some answers to the questions that people who responded to the PSP thought were most important.

When we set out to find the top 10 priorities for Type 2 diabetes research, we wanted to make sure they represented everyone affected by the condition. In particular, people from Black, Asian and minority ethnic (BAME) communities, who are two to four times more likely to develop the condition.

The first JLA PSP to announce its Top 10 priorities for future research was in Asthma in March 2007. One of the questions that patients, carers and health professionals jointly agreed that they wanted future research to tell us more about was “What are the benefits of breathing exercises as a form of physical therapy for asthma?”

The JLA's two newest Advisers, Tricia Ellis and Toto Gronlund, reflect on why they joined the JLA, what it means to them and how far they think it can go.

The Type 2 Diabetes Priority Setting Partnership (T2D PSP) has just announced its top 10 priorities. With input from over 4000 people who submitted over 8000 ideas for research, this has been one of the JLA’s larger PSPs. As their involvement on the project comes to an end, Steering Group members reflect on the experience from their individual perspectives.

Douglas Findlay, Steering Group member, Emergency Medicine Priority Setting Partnership, looks back over the course of the priority setting process he was a part of. He explains why he believes the work of the James Lind Alliance is so valuable, and why he would encourage others to get involved.

It’s important that Priority Setting Partnerships (PSPs) think about the people they are trying to talk to and how to make it as easy as possible for them to get involved. The Canadian Dementia PSP has announced its Top 10 recently and made some interesting adjustments to help people with a diagnosis of dementia to join in with the priority setting

Marie Curie has published a report looking at how current and recently completed health research in the UK relates to each of the 83 questions prioritised by the Palliative and end of life care PSP

Emily Burns, Research Communications Manager at Diabetes UK, reflects on her experience as a participant in the Contraception PSP Final Workshop. Emily describes the process, and relates this to her work with the Type 2 Diabetes PSP, which is currently planning its own final workshop.

Marie Curie announces £1.5 million joint funding call to address gaps in palliative and end of life care research

A horizon scanning review has been produced by the NIHR Horizon Scanning Research & Intelligence Centre (HSRIC) on new and emerging technologies for hearing loss. This review was done in response to research questions prioritised by the Mild to Moderate Hearing Loss PSP in 2015.

Marie Curie, in partnership with the Scottish Government Chief Scientist Office (CSO) and the Motor Neurone Disease (MND) Association, has announced the research grants awarded to address research questions identified by the Palliative and end of life care PSP.

Professor Deborah Hall, from the NIHR Nottingham Hearing Biomedical Research Unit, together with the British Tinnitus Association, has been keeping track of all the research that is aimed at the Top 10 priorities of the Tinnitus PSP.