News and publications

We’re delighted to announce that three new James Lind Alliance (JLA) Advisers have recently joined the team to help us work with the growing number of Priority Setting Partnerships (PSPs).

Many readers will already be familiar with the work of the University of Oxford Health Experiences Research Group (HERG) in conducting narrative research into people’s experiences of health and illness.

The JLA Guidebook has been fully updated. Published in February 2016, Version 6 of the Guidebook has been condensed and revised to take account of learning from Priority Setting Partnerships (PSPs) over the last few years.

Leanne Metcalf has been a JLA Adviser since 2013 and has been involved in thirteen different PSPs, either chairing them or helping to facilitate their final workshops.

A new Contraception Priority Setting Partnership has begun its process to create a Top 10 priority list of research uncertainties, put together by patients, their partners and clinicians.

One year ago today (15th January 2015), Marie Curie published the results of the Palliative and end of life care Priority Setting Partnership at the Palliative and end of life Care Research Summit in London.

We’re pleased to announce that the JLA is seeking an additional JLA Adviser to ensure that the growing demand for JLA Priority Setting Partnerships (PSPs) can be met.

A new Priority Setting Partnership (PSP) survey has opened, giving everyone affected by miscarriage and recurrent miscarriage the chance to submit their unanswered questions about the condition.

Autistica, as the UK’s largest autism research charity, is leading on the Autism PSP. We launched our consultation in May of this year and have since closed the survey, satisfied that responses adequately represented all key target groups.

This important process raises awareness about hair loss disorders and provides a positive direction for hair loss research, helping address the needs of the patients and the people who look after them.

The Womb Cancer PSP completed an on line survey at the end of May 2015 receiving nearly 800 responses from approximately 380 participants, of whom approximately half were patients or carers.

Marie Curie is launching its largest ever research call today in partnership with the Scottish Government Chief Scientist Office (CSO) and the Motor Neurone Disease Association (MND Association), totalling £1,425,000.

Hearing loss has a significant impact on interpersonal communication, psychological well-being, quality of life and economic independence (Olusanya et al, 2014).

In November 2014, the Hair loss PSP, funded by Alopecia UK and initiated by the British Hair and Nail Society, closed its initial on-line survey. We had 912 survey responders – 81 percent were completed by patients, or carers, and 12.6 percent by healthcare professionals or organisations.

Katherine Cowan, the JLA’s Senior Adviser, tells us about a paper suggesting that much of the research being done still doesn’t match what patients and clinicians want to see researched.