News and publications

In November 2014, the Hair loss PSP, funded by Alopecia UK and initiated by the British Hair and Nail Society, closed its initial on-line survey. We had 912 survey responders – 81 percent were completed by patients, or carers, and 12.6 percent by healthcare professionals or organisations.

Katherine Cowan, the JLA’s Senior Adviser, tells us about a paper suggesting that much of the research being done still doesn’t match what patients and clinicians want to see researched.

In 2014, we completed our JLA PSP, which set out to identify the top 10 research priorities for Parkinson’s. The process itself was a fairly daunting task but the real challenge has been how to take these priorities forward within the funding and research world.

Yesterday was the final day of the Royal College of Emergency Medicine’s annual conference, where Jason Smith gave a talk launching the Priority Setting Partnership (PSP) in Emergency Medicine.

In July 2014, the Childhood Disability Priority Setting Partnership (PSP) completed its mission to identify priorities for research into neurodisability in children.

A new EME Programme-funded study has recently got underway to test a treatment for keratoconus in children and young people.

An opportunity to bring together people who have carried out evaluations of JLA methods and outcomes with a chance to learn and reflect on the experiences of more than a decade of priority setting.

The NIHR has published a new report about setting future priorities for mesothelioma research. The report follows an NIHR-funded Priority Setting Partnership (PSP) set up by the James Lind Alliance to identify and prioritise future mesothelioma research topics.

Today, the NIHR and the British Society of Gastroenterology (BSG) have opened a survey to collect important information to help prioritise unanswered questions about alcohol-related liver disease (ARLD).

This week sees the official launch of an important Priority Setting Partnership set up by the James Lind Alliance to identify and prioritise unanswered questions about alcohol-related liver disease.