News and publications

The Alzheimer Society of Manitoba ran a focus group for their members, to help them to contribute to the Dementia (Canada) PSP.

The College of Optometrists has developed a report outlining the outcomes of the Visual Impairment and Dementia (VIDem) Summit.

The Canadian Dementia Priority Setting Partnership has just launched its questionnaire. Like every Priority Setting Partnership (PSP), we are hoping for responses from different groups and from across the country.

The PReSUTINeB study is now live, addressing the number four priority from the Spinal Cord Injury Priority Setting Partnership. By taking part, patients will be helping to improve understanding of Urinary Tract Infections and inform future treatment of this debilitating condition.

We’re delighted to announce that three new James Lind Alliance (JLA) Advisers have recently joined the team to help us work with the growing number of Priority Setting Partnerships (PSPs).

Many readers will already be familiar with the work of the University of Oxford Health Experiences Research Group (HERG) in conducting narrative research into people’s experiences of health and illness.

The JLA Guidebook has been fully updated. Published in February 2016, Version 6 of the Guidebook has been condensed and revised to take account of learning from Priority Setting Partnerships (PSPs) over the last few years.

Leanne Metcalf has been a JLA Adviser since 2013 and has been involved in thirteen different PSPs, either chairing them or helping to facilitate their final workshops.

A new Contraception Priority Setting Partnership has begun its process to create a Top 10 priority list of research uncertainties, put together by patients, their partners and clinicians.

One year ago today (15th January 2015), Marie Curie published the results of the Palliative and end of life care Priority Setting Partnership at the Palliative and end of life Care Research Summit in London.

We’re pleased to announce that the JLA is seeking an additional JLA Adviser to ensure that the growing demand for JLA Priority Setting Partnerships (PSPs) can be met.

A new Priority Setting Partnership (PSP) survey has opened, giving everyone affected by miscarriage and recurrent miscarriage the chance to submit their unanswered questions about the condition.

Autistica, as the UK’s largest autism research charity, is leading on the Autism PSP. We launched our consultation in May of this year and have since closed the survey, satisfied that responses adequately represented all key target groups.

This important process raises awareness about hair loss disorders and provides a positive direction for hair loss research, helping address the needs of the patients and the people who look after them.

The Womb Cancer PSP completed an on line survey at the end of May 2015 receiving nearly 800 responses from approximately 380 participants, of whom approximately half were patients or carers.