News and publications
New JLA Advisers join the team
27 April 2016
We’re delighted to announce that three new James Lind Alliance (JLA) Advisers have recently joined the team to help us work with the growing number of Priority Setting Partnerships (PSPs).Healthtalk and the Oxford Health Experiences Research Group archive as a source of treatment uncertainties and research questions
21 April 2016
Many readers will already be familiar with the work of the University of Oxford Health Experiences Research Group (HERG) in conducting narrative research into people’s experiences of health and illness.Latest version of the James Lind Alliance Guidebook published
04 March 2016
The JLA Guidebook has been fully updated. Published in February 2016, Version 6 of the Guidebook has been condensed and revised to take account of learning from Priority Setting Partnerships (PSPs) over the last few years.Patients’ priorities matter, but what happens if you have two opposite groups of patients?
03 March 2016
Leanne Metcalf has been a JLA Adviser since 2013 and has been involved in thirteen different PSPs, either chairing them or helping to facilitate their final workshops.New JLA Priority Setting Partnership to prioritise future research in contraception
18 January 2016
A new Contraception Priority Setting Partnership has begun its process to create a Top 10 priority list of research uncertainties, put together by patients, their partners and clinicians.PeolcPSP one year on: How to continue to address the research priorities post dissemination
15 January 2016
One year ago today (15th January 2015), Marie Curie published the results of the Palliative and end of life care Priority Setting Partnership at the Palliative and end of life Care Research Summit in London.The JLA is seeking an additional adviser to join the team
03 December 2015
We’re pleased to announce that the JLA is seeking an additional JLA Adviser to ensure that the growing demand for JLA Priority Setting Partnerships (PSPs) can be met.New PSP launches to identify unanswered questions about miscarriage
17 November 2015
A new Priority Setting Partnership (PSP) survey has opened, giving everyone affected by miscarriage and recurrent miscarriage the chance to submit their unanswered questions about the condition.Manageable data sets and equal representation from a diverse community
13 November 2015
Autistica, as the UK’s largest autism research charity, is leading on the Autism PSP. We launched our consultation in May of this year and have since closed the survey, satisfied that responses adequately represented all key target groups.The results are in! Hair Loss PSP announces TWO Top 10 priorities for research
10 November 2015
This important process raises awareness about hair loss disorders and provides a positive direction for hair loss research, helping address the needs of the patients and the people who look after them.The Womb Cancer PSP is asking for help to prioritise its list of unanswered questions
06 November 2015
The Womb Cancer PSP completed an on line survey at the end of May 2015 receiving nearly 800 responses from approximately 380 participants, of whom approximately half were patients or carers.Palliative and end of life care PSP informs Marie Curie call for research
27 October 2015
Marie Curie is launching its largest ever research call today in partnership with the Scottish Government Chief Scientist Office (CSO) and the Motor Neurone Disease Association (MND Association), totalling £1,425,000.Top 10 research priorities for mild-moderate hearing loss in adults
15 October 2015
Hearing loss has a significant impact on interpersonal communication, psychological well-being, quality of life and economic independence (Olusanya et al, 2014).Hair Loss PSP questions in review stage
14 October 2015
In November 2014, the Hair loss PSP, funded by Alopecia UK and initiated by the British Hair and Nail Society, closed its initial on-line survey. We had 912 survey responders – 81 percent were completed by patients, or carers, and 12.6 percent by healthcare professionals or organisations.Patients’ and Researchers’ Priorities: a mismatch still exists
08 October 2015
Katherine Cowan, the JLA’s Senior Adviser, tells us about a paper suggesting that much of the research being done still doesn’t match what patients and clinicians want to see researched.