News and publications

We are delighted that in 2020 the James Lind Alliance (JLA) has reached the milestone of 100 completed Priority Setting Partnerships (PSPs). The JLA has been privileged to support many charities working with their communities in identifying and agreeing priorities for research.

From a clinician perspective, involvement in a PSP not only helps ensure that research funded supports the practical decisions that clinical and care teams need to make every day but can have an impact in other ways too.

In 2004 when the JLA was established, could we have foreseen the impact that being involved with PSPs would have on patients and carers?

In this update we hear about a project that has been encouraging the research community to respond to the priorities identified by the Mental Health in Children and Young People JLA PSP

The Sexual Violence Priority Setting Partnership (PSP) shares their experience of using crowdfunding to support fundraising for the PSP

This update talks about the work that has been happening since publication of the priorities agreed by the JLA Neuro-Oncology PSP in 2015

Shelly Williamson, who coordinated the Idiopathic Intracranial Hypertension (IIH) JLA PSP that was completed in 2018, has kindly updated us on some exciting new research around the condition.

The Royal College of Occupational Therapists is working with the JLA to identify the research priorities for occupational therapy in the UK. The project is guided by a Steering Group made up of occupational therapists, health and social care professionals, people with experience of accessing occupational therapy services and their carers. Isaac Samuels, co-chair of the National Co-production Advisory Group at Think Local Act Personal, shared his thoughts on getting involved with this project.

Tamara joined the team as a JLA Adviser in late 2019, as part of a collaboration between the JLA and the Canadian Agency for Drugs and Technologies in Health (CADTH). She updates us on JLA work in Canada.

The first Steering Group meeting of the Maternal and Newborn Health (MNH) JLA PSP in Mbale, Uganda, was held in early December 2019. I am privileged and really pleased to be the Chair of this PSP.

Our PSP team knew from the start that we would need to think “outside the box” when it came to engaging Saskatchewan residents with obstructive sleep apnea (OSA) to find out their treatment-related questions.

How do we know if a prioritisation exercise is legitimate and that the resulting priorities are credible? We can only make that judgement if things are reported transparently and comprehensively – and unfortunately for the world of research priority setting, historically this hasn’t always happened

Richard Holt, Editor-in-Chief of Diabetic Medicine and Professor in Diabetes and Endocrinology at the University of Southampton, explains how the series of review articles for the priorities from the Type 1 and 2 Diabetes JLA PSPs came about

Ruth Unstead-Joss from the Royal College of Occupational Therapists (RCOT) explains what the Occupational Therapy Priority Setting Partnership (PSP) learnt from promoting its first survey

Dr James Cusack, Director of Science at Autistica, describes how the charity has worked with the NIHR to address some of the autism community's priorities following completion of the Autism PSP