News and publications

Florence Lai updates us on how the Heart Surgery PSP is working with members of its community to translate the priority areas into applications for high-quality clinical trials

The Dutch Juvenile Idiopathic Arthritis Research Agenda has received a National PGO Support Impact Prize 2020 for patient involvement.

To mark the completion of 100 JLA PSPs, Katherine Cowan looks back on her involvement with the James Lind Alliance since 2008.

What each PSP plans to do to support the priorities after they are agreed is vital. This needs to be planned for at the start of the PSP.

JLA Advisers provide skilled chairing and facilitation expertise to a PSP and we're grateful for their valuable support in completing 100 JLA PSPs.

JLA PSPs originated in the UK, but it’s exciting to see how the method is increasingly being used across the globe.

JLA PSPs can ensure the right questions are asked as well as raise the profile of health conditions with the research and funding community.

We are delighted that in 2020 the James Lind Alliance (JLA) has reached the milestone of 100 completed Priority Setting Partnerships (PSPs). The JLA has been privileged to support many charities working with their communities in identifying and agreeing priorities for research.

From a clinician perspective, involvement in a PSP not only helps ensure that research funded supports the practical decisions that clinical and care teams need to make every day but can have an impact in other ways too.

In 2004 when the JLA was established, could we have foreseen the impact that being involved with PSPs would have on patients and carers?

In this update we hear about a project that has been encouraging the research community to respond to the priorities identified by the Mental Health in Children and Young People JLA PSP

The Sexual Violence Priority Setting Partnership (PSP) shares their experience of using crowdfunding to support fundraising for the PSP

This update talks about the work that has been happening since publication of the priorities agreed by the JLA Neuro-Oncology PSP in 2015

Shelly Williamson, who coordinated the Idiopathic Intracranial Hypertension (IIH) JLA PSP that was completed in 2018, has kindly updated us on some exciting new research around the condition.

The Royal College of Occupational Therapists is working with the JLA to identify the research priorities for occupational therapy in the UK. The project is guided by a Steering Group made up of occupational therapists, health and social care professionals, people with experience of accessing occupational therapy services and their carers. Isaac Samuels, co-chair of the National Co-production Advisory Group at Think Local Act Personal, shared his thoughts on getting involved with this project.