News and publications

Where can researchers get help and advice about their funding applications, to give them the best chance of receiving funding for their work?

The Cystic Fibrosis Trust has written an update giving examples of what's happened to the cystic fibrosis research priorities agreed by the PSP around five years ago

The James Lind Alliance (JLA) is recruiting another JLA Adviser to join our team. We are looking for an independent consultant who will contract with the University of Southampton to support and facilitate JLA Priority Setting Partnerships.

The Juvenile Idiopathic Arthritis (JIA) PSP team in the Netherlands (Christine Dedding, Karijn Aussems & Casper Schoemaker) has kindly updated us on their experience of exploring how to engage children in a PSP.

A project is now underway to map out the varying information available from JLA PSPs and identify common themes which cut across PSPs

Hear from the Children's Cancer PSP about how they produced engaging materials that would help children to understand the process

Recently, in the most global JLA workshop so far, priorities around methods of rapid reviews were decided by patients, carers, members of the public, researchers, funders, policymakers, reviewers and clinicians from 11 countries.

The Type 2 Diabetes JLA PSP published its Top 10 in 2017. Kamini Shah, Head of Research Funding at Diabetes UK, brings us up to date with work that Diabetes UK has been doing to fund and encourage life-changing research in the priority areas.

Identification of the Top 10 research priorities for occupational therapy in the UK was just the start. The Royal College of Occupational Therapists is now targeting a range of activities to make sure that the Top 10 is taken forward and the questions that matter most to people who access and deliver occupational therapy services are addressed.

Ten research priorities into the care and support of those aged 65 and over in Wales have been developed by Health and Care Research Wales and Social Care Wales.

Sandra, a carer representative on the Stroke PSP steering group, reflects on her role within the group and shares her experience on her involvement in the creation of the indicative questions.

A new list of ten questions chosen by patients and clinicians will help guide future research in diabetes and pregnancy to deliver maximum value and impact.

The Pediatric Cancer PSP team in Canada has kindly updated us on their experience of researching the best ways to use social media to boost responses to their survey

Florence Lai updates us on how the Heart Surgery PSP is working with members of its community to translate the priority areas into applications for high-quality clinical trials

The Dutch Juvenile Idiopathic Arthritis Research Agenda has received a National PGO Support Impact Prize 2020 for patient involvement.