Priority from the Teenage and Young Adult Cancer PSP

UNCERTAINTY: What are the factors that should determine stopping treatment when the young person cannot be cured?
Overall ranking This was one of the 20 questions at the workshop that fell outside of the Top 10. These were not ranked in any order of priority
JLA question ID 0060/18
Explanatory note Open and honest communication at this time can be difficult; we know that early conversations between the young person, family members and professionals is crucial. A decision that involves all these parties is essential, but what initiates that conversation will be different for each young person: a young person needs to be enabled to voice their concerns. 
Evidence

None identified
Health Research Classification System category Cancer
Extra information provided by this PSP
Original uncertainty examples Appropriateness of treatment when patients not going to physically improve. ~ How to decide when enough treatment is enough?
Submitted by 1 x health professionals ~ 1 x parent/carers 
PSP information
PSP unique ID 0060
PSP name Teenage and Young Adult Cancer
Total number of uncertainties identified by this PSP. 185  (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop 19 January 2018