Dystrophic Epidermolysis Bullosa (Spain) (priority setting in association with the JLA)

The Steering Group for this PSP comprised eight people with experience in Dystrophic Epidermolysis Bullosa (DEB) including patients/carers, a representative from the Dystrophic Epidermolysis Bullosa Research Association Spain (DEBRA Spain), healthcare professionals (dermatologists and nurses) and researchers/epidemiologists.

The Dystrophic Epidermolysis Bullosa Top 10 was published in October 2012.