Priority 14 from the Cavernoma PSP

UNCERTAINTY: Why do only around half of people with a cavernoma gene mutation develop symptoms? (JLA PSP Priority 14)
Overall ranking 14
JLA question ID 0035/14
Explanatory note Not available for this PSP

None available

Health Research Classification System category Neurological 
Extra information provided by this PSP
Original uncertainty examples Not available
Comparison Aetiology; Prognosis
Submitted by 60 patients, 28 carers
Outcomes to be measured Adverse effects or complications; time in hospital and or needing health or social care services; health related quality of life
PSP information
PSP unique ID 0035
PSP name Cavernoma
Total number of uncertainties identified by this PSP. 54  
Date of priority setting workshop 23 September 2015