Priority from the Idiopathic Intracranial Hypertension PSP

UNCERTAINTY: How big is the impact of headache in IIH (how severe are headaches, how often do they occur, how many years do they continue for and how do they impact patients quality of life)? 
Overall ranking This was one of the 16 questions at the workshop that fell outside of the Top 10.
JLA question ID 0066/15
Explanatory note Not available for this PSP

Partial answer - Mulla Y, Markey KA, Woolley RL, Patel S, Mollan SP, Sinclair AJ. (2015) Headache determines quality of life in idiopathic intracranial hypertension. J Headache Pain. 16:521. doi: 10.1186/s10194-015-0521-9.

Health Research Classification System category Neurological
Extra information provided by this PSP
Original uncertainty examples What proportion of people with successfully managed IIH (papilloedema and CSF pressure) will continue to suffer from headache symptoms and what type of headaches will they be? ~ Does the headache resolve after a certain amount of time? ~ What is the headache phenotype in individuals with IIH?
Submitted by See data spreadsheet on JLA website
PSP information
PSP unique ID 0066
PSP name Idiopathic Intracranial Hypertension
Total number of uncertainties identified by this PSP. 48  (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop 27 April 2018