Gathering uncertainties
Methods used (eg, survey, focus groups, interviews): Online survey with adult survivors of childhood cancer, families, friends and professionals.
| Number | % | |
| Total respondents (across all methods) | 488 | 100 |
| Total patients and carers | 340 | 70 |
| Total health and care professionals | 148 | 30 |
| Total number of original uncertainties submitted | 1299 | 100 |
| Original uncertainties in scope | 1160 | 89 |
| Original uncertainties out of scope | 139 | 11 |
Methods used (eg, survey, focus groups, interviews): Online surveys with children and young people.
| Number | % | |
| Total respondents (across all methods) | 71 | 100 |
| Total patients and siblings | 71 | 100 |
| Total health and care professionals | N/A | N/A |
| Total number of original uncertainties submitted | 252 | 100 |
| Original uncertainties in scope | 239 | 95 |
| Original uncertainties out of scope | 13 | 5 |
Interim prioritisation
Methods used (eg, survey, focus groups, interviews): Online survey with adult survivors of childhood cancer, families, friends and professionals.
| Number | % | |
| Total number of indicative questions (answered & unanswered) | 108 | 100 |
| Number of verified answered questions | 4 | 4 |
| Number of questions which are the focus of ongoing studies | 3 | 3 |
| Number of verified unanswered questions | 101 | 94 |
| Number of verified unanswered questions included in the interim prioritisation | 101 | |
| Total respondents (across all methods) | 327 | 100 |
| Total patients and carers | 237 | 72 |
| Total health and care professionals | 90 | 28 |
| Number of questions taken to final workshop | 23 |
Priority setting workshop with children and young people
| Number | % | |
| Total participants | 8 | 100 |
| Total patients and siblings | 8 | 100 |
| Total health and care professionals | N/A | N/A |
Final priority setting workshop
| Number | % | |
| Total participants | 25 | 100 |
| Total patients and carers | 10 | 40 |
| Total health and care professionals | 15 | 60 |
Notes:
eg please explain if totals do not add up to 100%
24 summary questions were taken to the children and young people’s workshop which had come from the surveys with children and young people. The workshop participants helped to create seven more summary questions about ‘family, friends, and pets’ as the meaning of the survey submissions on these topics were unclear. Six additional questions were also added which were important to the children and young people attending the workshop and were not already covered by existing summary questions.