Advanced Heart Failure PSP Engagement Summary

Contents

Published: 29 April 2020

Version: 1

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Gathering uncertainties

Methods used (eg, survey, focus groups, interviews): Surveys: online, paper format & easy read paper format and a small number of over the phone interviews with PPI  facilitator filing in form

  Number %
Total respondents (across all methods) 192 100
Total patients and carers (74 patients, 17 carers) 91 47
Total health and care professionals 92 48
Others (hp/public/researchers carers) 9 5
Total number of original uncertainties submitted 489 100
Original uncertainties in scope 454 93
Original uncertainties out of scope 35 7

 

Interim prioritisation

Methods used (eg, survey, focus groups, interviews): Surveys: online, paper format and a small number of over the phone interviews with PPI facilitator filling in paper form.

  Number %
Total number of indicative questions (answered & unanswered) 80 100
Number of verified answered questions 1  
Number of verified unanswered questions 9  
Number removed as it was felt that they could not be meaningfully answered 5  
Number of verified unanswered questions 65 100
 Number of verified unanswered questions included in the interim prioritisation 65  
 Total respondents (across all methods) 128 100
32 32  25
Total health and care professionals  96  75
Number of questions taken to final workshop  25  

 

Final priority setting workshop

  Number %
Total participants 25 100
Total patients and carers 8 32
Total health and care professionals 14 56
Other (2 charity representatives and 1 PPI facilitator 3 12