Gathering uncertainties
Methods used (eg survey, focus groups, interviews): online surveys
| Number | % | |
| Total respondents (across all methods) | 249a | 100 |
| Total patients and carers | 188 | 76 |
| Total health and care professionals | 31 | 12.5 |
| Total number of original uncertainties submitted | 1847 | 100 |
| Original uncertainties in scope | 1588 | 86 |
| Original uncertainties out of scope | 259 | 14 |
Interim prioritisation
Methods used (eg survey, focus groups, interviews): online survey
| Number | % | |
| Total number of indicative questions (answered & unanswered) | 187 | 100 |
| Number of verified answered questions | 30 | 16 |
| Number of verified unanswered questions | 157 | 84 |
| Number of verified unanswered questions included in the interim prioritisation | 156b | |
| Total respondents (across all methods) | 240c | 100 |
| Total patients and carers | 156 | 65 |
| Total health and care professionals | 42 | 18 |
| Number of questions taken to final workshop | 25 |
Final priority setting workshop
| Number | % | |
| Total participants | 22 | 100 |
| Total patients and carers | 16 | 73 |
| Total health and care professionals | 6 | 27 |
Notes
a28 respondents (11%) indicated “Prefer not to say”, “Other”, or entered no response and 2 respondents were members of a patient advocacy organization.
bTwo unanswered questions (48 and 72) were combined due to overlap in meaning and rephrased as a single question.
c42 respondents (18%) indicated “Prefer not to say” or entered no response