Pediatric Inflammatory Bowel Disease (Netherlands) PSP Engagement Summary

Contents

Published: 20 April 2023

Version: 1

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Gathering uncertainties

Methods used (e.g. survey, focus groups, interviews): survey (both online and hardcopy)

  Number %
Total respondents (across all methods) 222 100
Total patients   74 33
Total carers 89 40
Total health and care professionals 59 27
Total number of original uncertainties submitted 763 100
Original uncertainties in scope 660 87
Original uncertainties out of scope 103 13

 

Interim prioritisation

Methods used (eg survey, focus groups, interviews): Online Survey

  Number %
Total number of indicative questions (answered & unanswered) 64 100
Number of verified answered questions 5 8
Number of verified unanswered questions 59 92
Number of verified unanswered questions included in the interim prioritisation 59  
Total respondents (across all methods) 263 100
Total patients  70 27
Total carers 127 48
Total health and care professionals 66 25
Number of questions taken to final workshop 25  

 

Final priority setting workshop

  Number %
Total participants 30 100
Total patients  10 33
Total carers 12 40
Total health and care professionals 8 27