Degenerative Cervical Myelopathy PSP Engagement Summary

Gathering uncertainties

Open Online Survey, promoted through:

• Myelopathyorg, International Charity for DCM
• AOSpine, Non-Profit Spinal Education and Research Organisation
• Additional email calls to Healthcare Professionals, or Healthcare Professional Networks/Organisations identified using an internet search.
• Regional and National Conference Presentations, including
  1. Society of British Neurological Surgeons
  2. UK Academic Spine Symposium
  3. British Neurosurgical Research Group
  4. Global Spine Congress

	Number	%
Total respondents (across all methods)	429	100
Total patients and carers	99	23
Total health and care professionals	330	77
Total number of original uncertainties submitted	3404	100
Original uncertainties in scope	2998	88
Original uncertainties out of scope	406	12

 

Interim prioritisation

Methods used (eg survey, focus groups, interviews):

Open, online survey, promoted through:

• Round 1 Survey Respondents (if email address provided)
• org, International Charity for DCM
• AOSpine, Non-Profit Spinal Education and Research Organisation
• Additional email calls to Healthcare Professionals, or Healthcare Professional Networks/Organisations identified using an internet search.

	Number	%
Total number of indicative questions (answered & unanswered)	76	100
Number of verified answered questions	2	3
Number of verified unanswered questions	74	97
Number of verified unanswered questions included in the interim prioritisation	74
Total respondents (across all methods)	417	100
Total patients and carers	107	26
Total health and care professionals	310	74
Number of questions taken to final workshop	26

 

Final priority setting workshop

	Number	%
Total participants	25	100
Total patients and carers	12	48
Total health and care professionals	13	52