Degenerative Cervical Myelopathy PSP Engagement Summary

Contents

Gathering uncertainties

Open Online Survey, promoted through:

  • Myelopathyorg, International Charity for DCM
  • AOSpine, Non-Profit Spinal Education and Research Organisation
  • Additional email calls to Healthcare Professionals, or Healthcare Professional Networks/Organisations identified using an internet search.
  • Regional and National Conference Presentations, including
    1. Society of British Neurological Surgeons
    2. UK Academic Spine Symposium
    3. British Neurosurgical Research Group
    4. Global Spine Congress
  Number %
Total respondents (across all methods) 429 100
Total patients and carers 99 23
Total health and care professionals 330 77
Total number of original uncertainties submitted 3404 100
Original uncertainties in scope 2998 88
Original uncertainties out of scope 406 12

 

Interim prioritisation

Methods used (eg survey, focus groups, interviews):

Open, online survey, promoted through:

  • Round 1 Survey Respondents (if email address provided)
  • org, International Charity for DCM
  • AOSpine, Non-Profit Spinal Education and Research Organisation
  • Additional email calls to Healthcare Professionals, or Healthcare Professional Networks/Organisations identified using an internet search.
  Number %
Total number of indicative questions (answered & unanswered) 76 100
Number of verified answered questions 2 3
Number of verified unanswered questions 74 97
Number of verified unanswered questions included in the interim prioritisation 74  
Total respondents (across all methods) 417 100
Total patients and carers 107 26
Total health and care professionals 310 74
Number of questions taken to final workshop 26  

 

Final priority setting workshop

  Number %
Total participants 25 100
Total patients and carers 12 48
Total health and care professionals 13 52