Methods used (eg survey, focus groups, interviews)
Online survey from the 12th of February to the 15th of May 2021, hosted on REDCap cloud, plus hard copies sent through mail.
Responders and uncertainties
Number
Percentage
Total respondents (across all methods)
638
100
Total patients and carers
526
82.4
Total health and care professionals
93
14.6
Other (people who identified themselves in more than a category or organisation representatives)
19
3
Total number of original uncertainties submitted
2542
100
Original uncertainties in scope
1746
68.7
Original uncertainties out of scope
796
31.3
Interim prioritisation
Methods used (eg survey, focus groups, interviews)
Online survey from 6th of Apr – 10th May 2022, on Survey Monkey.
Responders and uncertainties
Number
Percentage
Total number of indicative questions (answered & unanswered)
48
100
Number of verified answered questions
5
10.4
Number of verified unanswered questions
44
91.7
Number of verified unanswered questions included in the interimprioritisation
44
Not applicable
Total respondents (across all methods)
834
100
Total patients and carers
702
84.2
Total health and care professionals
132
15.8
Number of questions taken to final workshop
15
Not applicable
Final priority setting workshop
Participants
Number
Percentage
Total participants
22
100
Total patients and carers
11
50
Total health and care professionals
8
36
Other (people who identified themselves in more than a category)
3
14
Notes:
Some ‘questions’ did not actually pose a question, but instead made a statement. These were generally identified as out of scope. On the main spreadsheet of questions they were not counted as a question, but had to be counted as a ‘question’ on the out of scope list due to the quantification requirement of the PSP engagement summary report.
Some questions contained elements that meant they could be grouped under more than one question. Each element was split and counted as a single question in this case.
during the interim prioritisation, the steering group split a question (predict AND diagnose acute exacerbation of PF).