Gathering uncertainties
Methods used (eg survey, focus groups, interviews)
An online survey was available in English and French.
| Responders and uncertainties | Number | Percentage |
|---|---|---|
| Total respondents (across all methods) | 84 | 100 |
| Total patients and carers | 58 | 69 |
| Total health and care professionals | 21 | 25 |
| Total number of original uncertainties submitted | 175 | 100 |
| Original uncertainties in scope | 170 | 97 |
| Original uncertainties out of scope | 5 | 3 |
Interim prioritisation
Methods used (eg survey, focus groups, interviews)
An online survey was available in English and French.
| Responders and uncertainties | Number | Percentage |
|---|---|---|
| Total number of indicative questions (answered & unanswered) | 83 | 100 |
| Number of verified answered questions | 0 | 0 |
| Number of verified unanswered questions | 83 | 100 |
| Number of verified unanswered questions included in the interim prioritisation | 83 | Not applicable |
| Total respondents (across all methods) | 61 | 100 |
| Total patients and carers | 37 | Not applicable |
| Total health and care professionals | 30 | Not applicable |
| Number of questions taken to final workshop | 17 | Not applicable |
Final priority setting workshop
| Participants | Number | Percentage |
|---|---|---|
| Total participants | 19 | 100 |
| Total patients and carers | 12 | 63 |
| Total health and care professionals | 7 | 37 |
Notes:
The JLA definition of an evidence uncertainty is that:
- no up-to-date, reliable systematic reviews of research evidence addressing the uncertainty exist.
- up-to-date systematic reviews of research evidence show that uncertainty exists.
Initial survey responders were asked to mark the main box(es) that best described them. Some respondents did not select any box; therefore, the sum of patients/carers and healthcare providers is less than the total number of participants.
Interim prioritisation responders were asked to mark the main box(es) that best described them. Some respondents ticked up to 3 boxes; therefore, the sum of patients/carers and healthcare providers is greater than the total number of participants.
At the final workshop some invited participants only attended one day of the final workshop.