Gathering uncertainties
Methods used (eg survey, focus groups, interviews)
Survey
| Responders and uncertainties | Number | Percentage |
|---|---|---|
| Total respondents (across all methods) | 156 | 100 |
| Total patients and carers | 105 | 67.31 |
| Total health and care professionals | 48 | 30.77 |
| Total number of original uncertainties submitted | 414 | 100 |
| Original uncertainties in scope | 407 | 98.31 |
| Original uncertainties out of scope | 7 | 1.69 |
Interim prioritisation
Methods used (eg survey, focus groups, interviews)
Survey
| Responders and uncertainties | Number | Percentage |
|---|---|---|
| Total number of indicative questions (answered & unanswered) | 92 | 100 |
| Number of verified answered questions | 47 | 51.09 |
| Number of verified unanswered questions | 45 | 48.91 |
| Number of verified unanswered questions included in the interim prioritisation | 45 | Not applicable |
| Total respondents (across all methods) | 102 | 100 |
| Total patients and carers | 54 | 52.94 |
| Total health and care professionals | 43 | 42.16 |
| Number of questions taken to final workshop | 18 | Not applicable |
Final priority setting workshop
| Participants | Number | Percentage |
|---|---|---|
| Total participants | 20 | 100 |
| Total patients and carers | 12 | 60 |
| Total health and care professionals | 8 | 40 |
Notes
During the gathering uncertainties survey, 181 people responded, however the above figures represent the respondents who completed the survey, and so whose responses were used to gather the uncertainties and form the research questions. 105 were patients and carers, and 48 were health and care professionals. The remaining 3 respondents were ‘other’.
During the interim prioritisation survey, 160 people opened the survey, however 58 respondents did not complete the survey. Of the valid responses, 54 were patients and carers, and 43 were health and care professionals. The remaining 5 respondents were as follows:
• 1 ‘other’
• 4 ‘member of an organisation or charity representing persons with IBD'
The final workshop received 23 expressions of interest, however 3 participants dropped out in the days preceding the workshop. These represented 2 young people and 1 healthcare representative. All participants were offered £150 of remuneration for their time.