Gathering uncertainties
Methods used (eg, survey, focus groups, interviews)
1. Survey 28.02.20-31.08.20 – online, plus paper/PDF versions in English, Welsh and Aphasiafriendly; all paper/PDF submissions were added to the online survey. 1407 respondents in total.
2. Workshops – 2 groups of people with aphasia, and 2 sessions with people affected at the virtual UK Stroke Assembly in July 2020. The participants at one of the aphasia groups completed individual surveys and these were added to the online survey. The questions from the other groups were added to the data set directly – a total of 33 questions from 15 people affected plus 4 carers.
3. Community Engagement - ISRAAC Somali Community Association (a registered community organisation based in Sheffield) spoke with 15 of their members who had had a stroke and gathered and presented questions in a report. 11 questions were added to the data set directly.
| Number | % | |
| Total respondents (across all methods) | 1,441 | 100 |
| Total patients and carers | 754 | 52 |
| Methods of responding for patients and carers: | ||
| Survey - 522 patients, 198 carers | ||
| Workshops - 15 patients, 4 carers | ||
| Community Engagement - 15 patients, 0 carers | ||
| TOTAL 552 patients, 202 carers | ||
| Total health and care professionals (by survey only) | 615 | 43 |
| Total who did not state whether they were a patient, carer or professional | 72 | 5 |
| Total number of original uncertainties submitted | 3,905 | 100 |
| Original uncertainties in scope | 3,792 | 97 |
| Original uncertainties out of scope (includes spoiled responses) | 113 | 3 |
Interim prioritisation
Methods used (eg, survey, focus groups, interviews):
1. Online survey 22.02.21-21.03.21
2. Assisted work with 3 people with aphasia to complete the online survey – included in the survey
| Number | % | |
| Total number of indicative questions (answered & unanswered) | 126 | 100 |
| Number of verified answered questions | 17 | 13 |
| Number of verified unanswered questions | 109 | 87 |
| Number of verified unanswered questions included in the interim prioritisation | 93 | |
| Total respondents (across all methods) | 1,154 | 100 |
| Total patients and carers | 475 | 41 |
| Total health and care professionals | 677 | 59 |
| Number of questions taken to final workshop - Rehabilitation and long-term care | 18 | |
| Number of questions taken to final workshop - Prevention, diagnosis, pre-hospital and hospital care | 14 |
Final priority setting workshop 1 - Rehabilitation and long-term care
| Number | % | |
| Total participants | 27 | 100 |
| Total patients and carers | 13 | 48% |
| Total health and care professionals | 14 | 52% |
Final priority setting workshop 2 - Prevention, diagnosis, pre-hospital and hospital care
| Number | % | |
| Total participants | 26 | 100 |
| Total patients and carers | 12 | 46% |
| Total health and care professionals | 14 | 53% |