Gathering uncertainties
Methods used (e.g. survey, focus groups, interviews): Survey. Analysis of submitted questions to categorise into 79 indicative questions. Literature review to ensure questions were true uncertainties- left 75 known unknowns.
| Number | % | |
| Total respondents (across all methods) | 223 (complete) | |
| Total survivors | 121 | 54.3 |
| Total health and care professionals | 36 | 16.1 |
| Total identifying as both survivor and professional | 66 | 29.6 |
| Total number of original uncertainties submitted | 671 | |
| Original uncertainties in scope | 484 | 72.1 |
| Original uncertainties out of scope | 187 | 27.9 |
Interim prioritisation
Methods used (eg survey, focus groups, interviews): Survey asking for prioritisation. Looked at weighted rankings to form list to take forward to workshop. Considered minority groups and top 7 for professionals, survivors, and both.
| Number | % | |
| Total number of indicative questions (answered & unanswered) | 79 | 100 |
| Number of verified answered questions | 4 | 5.1 |
| Number of verified unanswered questions | 75 | 94.9 |
| Number of verified unanswered questions included in the interim prioritisation | 75 | |
| Total respondents (across all methods) | 343 (complete) | |
| Total survivors | 207 | 60.3 |
| Total health and care professionals | 47 | 13.7 |
| Total identifying as both survivor and professional | 89 | 26 |
| Number of questions taken to final workshop | 18 |
Final priority setting workshop
| Number | % | |
| Total participants | 31 | 100 |
| Total survivors | 13 | 41.9 |
| Total health and care professionals | 2 | 6.5 |
| Total identifying as both survivor and professional | 16 | 51.6 |