Pediatric Cancer (Canada) PSP Engagement Summary

Gathering uncertainties

Methods used (e.g. survey, focus groups, interviews): 

Online survey created through REDCap and disseminated via study website, social media (e.g., Facebook, Instagram, Twitter) and partners/collaborators, including steering group committee members, health care organizations, community organizations, internal and external study stakeholders and researchers/academics.

	Number	%
Total respondents (across all methods)	330	100
Total Patients/survivors/caregivers	257	78
Total health and care professionals	73	22
Total number of original uncertainties submitted	697	100
Original uncertainties in scope	277	39.7
Original uncertainties out of scope	420	60.3

 

Interim prioritisation

Methods used (eg survey, focus groups, interviews): Online survey created through REDCap and disseminated via study website, social media and partners/collaborators, including health care organizations, community organizations, internal and external study stakeholders and researchers/academics.

	Number	%
Total number of indicative questions (answered & unanswered)	52	100
Number of verified answered questions	1	2
Number of verified unanswered questions	51	98
Number of verified unanswered questions included in the interim prioritisation	50
Total respondents (across all methods)	197	100
Total Patients/survivors/caregivers	149	76
Total health and care professionals	48	24
Number of questions taken to final workshop	24

 

Final priority setting workshop

	Number	%
Total participants	20	100
Total patients and carers	13 x Day 1 12 x Day 2	Day 1= 65 Day 2 = 60
Total health and care professionals	7 x Day 1 8 x Day 2	Day 1 = 35 Day 2 = 40

Notes: 

eg please explain if totals do not add up to 100%

Two verified unanswered questions were collapsed together during the evidence check process and put forward as one verified unanswered question in the interim prioritisation survey.

 Please note the final priority setting workshop took place over two half days.