Gathering uncertainties
Methods used (e.g. survey, focus groups, interviews): A survey was administered through REDCap in English and French to gather the uncertainties in combination with a focus group with parent partners.
| Number | % | |
| Total respondents (across all methods) | 188 | 100 |
| Total patients and carers | 54 | 29 |
| Total health and care professionals | 134 | 71 |
| Total number of original uncertainties submitted | 495 | 100 |
| Original uncertainties in scope | 437 | 88 |
| Original uncertainties out of scope | 58 | 12 |
Interim prioritisation
Methods used (eg survey, focus groups, interviews): A survey was administered through REDCap in English and French to complete the interim prioritisation.
| Number | % | |
| Total number of indicative questions (answered & unanswered) | 75 | 100 |
| Number of verified answered questions | 4 | 5 |
| Number of verified unanswered questions | 71 | 95 |
| Number of verified unanswered questions included in the interim prioritisation | 50 | |
| Total respondents (across all methods) | 201 | 100 |
| Total patients and carers | 44 | 22 |
| Total health and care professionals | 157 | 78 |
| Number of questions taken to final workshop | 16 |
Final priority setting workshop
| Number | % | |
| Total participants | 24 | 100 |
| Total patients and carers | 12 | 50 |
| Total health and care professionals | 12 | 50 |