Congenital Heart Disease PSP Engagement Summary

Contents

Published: 23 November 2022

Version: 1

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Gathering uncertainties

Methods used (eg, survey, focus groups, interviews): Survey

  Number %
Total respondents (across all methods) 524 100
Total patients and carers 387 73.9
Total health and care professionals 135 25.8
Total number of original uncertainties submitted 1370 100
Original uncertainties in scope 1060 77.4
Original uncertainties out of scope 310 22.6

 

Interim prioritisation - Child/Antenatal CHD

Methods used (eg, survey, focus groups, interviews: Survey

  Number %
Total number of indicative questions (answered & unanswered) 59 100
Number of verified answered questions 5.1 
Number of verified unanswered questions 56  94.9 
Number of verified unanswered questions included in the interim prioritisation 56   
Total respondents (across all methods) 250  100 
Total patients and carers 146  58.4 
Total health and care professionals 101  40.4 
Number of questions taken to final workshop 26   

 

Interim prioritisation - Adult CHD

Methods used (eg, survey, focus groups, interviews: Survey

  Number %
Total number of indicative questions (answered & unanswered)  49  100
Number of verified answered questions 4.1 
Number of verified unanswered questions 47  95.9 
Number of verified unanswered questions included in the interim prioritisation 47   
Total respondents (across all methods) 252  100 
Total patients and carers 182  72.2 
Total health and care professionals 68  27.0 
Number of questions taken to final workshop 26   

 

Final priority setting workshop - Child/Antenatal CHD

  Number %
Total participants 19 100
Total patients and carers 47.4 
Total healthcare professionals 10  52.6 

Final priority setting workshop - Adult CHD

  Number %
Total participants 20 100
Total patients and carers 45 
Total healthcare professionals 11  55 

Notes:

One initial survey was carried out, after which, for interim prioritisation, the questions were split into two groups: child/antenatal (n=56) and adult (n=47). Some questions were unique to the groups respectively, others were applicable to both, and were duplicated but worded accordingly.

  • Number of questions that were applicable to both groups = 38
  • Number of child/antenatal-specific questions = 18
  • Number of adult-specific questions = 9 

Child/Antenatal CHD

  • Total respondents for ‘Gathering uncertainties’ section includes 2 who gave no demographic information.
  • Total respondents for interim prioritisation includes 3 charity representatives.

Adult CHD

  • Total respondents for ‘Gathering uncertainties’ section includes 2 who gave no demographic information.
  • Total respondents for interim prioritisation includes 2 charity representatives.