Juvenile Idiopathic Arthritis (Netherlands)
The Dutch Juvenile Idiopathic Arthritis (JIA) Priority Setting Partnership (PSP) aims to create a research agenda together with patients, carers and clinicians, in order to guide researchers and funders to questions that really matter for patients and impact their lives.
The Dutch JIA PSP is an initiative of two JIA patient organisations (Jeugdreumavereniging Nederland and Youth-R-Well), the Dutch organisation for paediatric rheumatologists (Nederlandse Vereniging voor Kinderreumatologie, NVKR) and the Dutch organisation for other health professionals in paediatric rheumatology, such as physical therapists (Nederlandse Health Professionals Kinderreumatologie, NHPKR).
The PSP officially launched in October 2018. The survey in Dutch was launched in December 2018 on www.jeugdreumavereniging.nl/onderzoeksagenda