News and publications

Randomised clinical trials are the gold standard method for gathering evidence about health and care interventions. That said, randomised trials are not perfect, and many of them run into issues through the process of trial design and delivery. The PrioRiTy II work identified the most important questions to be answered about retention of participants in clinical trials.

Coeliac UK, the national charity that led the Coeliac JLA Priority Setting Partnership, has announced funding for research projects in areas highlighted by the PSP, in collaboration with Innovate UK, the UK’s innovation agency.

Louise Ross, Clinical Consultant, National Centre for Smoking Cessation and Training, provides an update on the progress of the Electronic Cigarettes PSP.

Read about how the Heart Surgery Priority Setting Partnership (PSP) has been communicating with the patients, carers and clinicians it needs to hear from.

The James Lind Alliance (JLA) would like to recruit JLA Advisers to join the team. We are looking for independent consultants who will contract with the University of Southampton to support and facilitate JLA Priority Setting Partnerships.

Louise Ross, Clinical Consultant, National Centre for Smoking Cessation and Training, describes her experience of joining a JLA Priority Setting Partnership Steering Group.

The Cystic Fibrosis PSP, which published its Top 10 in January 2017, has been continuing its work to make sure that researchers and research funders know the questions that really matter to those living with Cystic Fibrosis and the people who treat them.

Project participant feedback & interviews from the Learning Difficulties (Scotland) PSP

Katherine Cowan, JLA Senior Adviser, describes a week in the life of a JLA Adviser

We’re delighted to say that the James Lind Alliance was awarded joint second place in the Cochrane-REWARD prize for reducing waste in research.

Patients, carers and clinicians have highlighted continence issues as being important across James Lind Alliance Priority Setting Partnerships (PSPs) in Parkinson’s, Palliative and end of life care, Inflammatory Bowel Disease, Dementia and MS.

The Digital Technology for Mental Health JLA PSP used a variety of methods to gather uncertainties from all the types of people it thought it was important to hear from. The PSP realised that using an online survey would not suit everyone.

The charity Autistica completed its PSP looking at research priorities from all those who know and understand Autism in May 2016. Since then, Autistica has set about funding researchers in the UK to help provide some answers to the questions that people who responded to the PSP thought were most important.

When we set out to find the top 10 priorities for Type 2 diabetes research, we wanted to make sure they represented everyone affected by the condition. In particular, people from Black, Asian and minority ethnic (BAME) communities, who are two to four times more likely to develop the condition.

The first JLA PSP to announce its Top 10 priorities for future research was in Asthma in March 2007. One of the questions that patients, carers and health professionals jointly agreed that they wanted future research to tell us more about was “What are the benefits of breathing exercises as a form of physical therapy for asthma?”