News and publications

  • REPRISE reporting Guidelines

    REPRISE reporting Guidelines

    27 March 2020

    How do we know if a prioritisation exercise is legitimate and that the resulting priorities are credible? We can only make that judgement if things are reported transparently and comprehensively – and unfortunately for the world of research priority setting, historically this hasn’t always happened
  • The Story of the Diabetic Medicine special issue on JLA Research Priorities

    The Story of the Diabetic Medicine special issue on JLA Research Priorities

    06 March 2020

    Richard Holt, Editor-in-Chief of Diabetic Medicine and Professor in Diabetes and Endocrinology at the University of Southampton, explains how the series of review articles for the priorities from the Type 1 and 2 Diabetes JLA PSPs came about
  • Reaching people with lived experience through a survey - lessons from the Occupational Therapy PSP

    Reaching people with lived experience through a survey - lessons from the Occupational Therapy PSP

    07 January 2020

    Ruth Unstead-Joss from the Royal College of Occupational Therapists (RCOT) explains what the Occupational Therapy Priority Setting Partnership (PSP) learnt from promoting its first survey
  • Collaborating to maximise the impact of autism research

    Collaborating to maximise the impact of autism research

    17 December 2019

    Dr James Cusack, Director of Science at Autistica, describes how the charity has worked with the NIHR to address some of the autism community's priorities following completion of the Autism PSP
  • Sally Crowe and Kristina Staley reflect on their recent evaluation of JLA PSPs

    Sally Crowe and Kristina Staley reflect on their recent evaluation of JLA PSPs

    25 October 2019

    Success isn’t only about getting a priority research topic funded, as Sally and Kristina found to their surprise when they talked to a wide range of people with an interest in JLA PSPs. Taking part in a JLA PSP can also transform the people, the research culture and the organisations involved
  • Reflections from new JLA Advisers

    Reflections from new JLA Advisers

    22 October 2019

    Jonathan Gower and Suzannah Kinsella joined the team as new JLA Advisers earlier in 2019. We asked them to write about their experiences so far now that they are both working with PSPs. Very appropriately, they decided on a Top 10 of what has struck them as most interesting and valuable about the JLA PSP process
  • Priority Setting Partnerships starting work in Africa

    Priority Setting Partnerships starting work in Africa

    17 October 2019

    Two new JLA Priority Setting Partnerships (PSPs) are now planning their work to develop locally appropriate research priorities by bringing together technical experts and experts by lived experience, regardless of social status, age, literacy level and internet access.
  • Latest steps from PSPs to focus the attention of researchers, funders and charities on the agreed priorities

    Latest steps from PSPs to focus the attention of researchers, funders and charities on the agreed priorities

    11 October 2019

    The Teenage and Young Adult Cancer PSP recently brought together researchers, funders and charities in a workshop to discuss the priorities and consider opportunities for funding. The Palliative and end of life care PSP is planning another workshop too, this time to focus on its number one priority around out of hours care
  • Using JLA PSP priorities to train future doctors

    Using JLA PSP priorities to train future doctors

    12 August 2019

    Professor Jackie Cassell, Director of Research and Knowledge Exchange at Brighton and Sussex Medical School, spoke to the JLA about how the school has used PSP priorities for a number of years to provide real-life research questions to help educate future doctors about research methods.
  • Charities fund research around the priorities from the IBD PSP

    Charities fund research around the priorities from the IBD PSP

    28 June 2019

    Guts UK is a charity set up to increase the levels of research into diseases of the gut, liver and pancreas. Since 1971 Guts UK has funded almost 300 projects and invested £15 million pounds into medical research. Last year, in collaboration with forCrohns, Guts UK asked researchers to put forward proposals for research on Crohn’s disease that the two charities could fund, based on the research priorities identified by the JLA PSP in Inflammatory Bowel Disease.
  • Neurodevelopmental Disorders (Canada) PSP – Bringing community priorities to life

    Neurodevelopmental Disorders (Canada) PSP – Bringing community priorities to life

    10 June 2019

    The Ontario Brain Institute funded the Neurodevelopmental Disorders (Canada) PSP and has spent the past year promoting the Top 10 priorities to ensure that they reach the right audiences. This includes researchers, organisations that fund research, the community, and general public.
  • Hearing from PSPs.  What do people tell the JLA?

    Hearing from PSPs. What do people tell the JLA?

    22 May 2019

    The JLA has been collecting feedback from completed PSPs for two years. In that time, 49 individuals involved in organising PSPs have completed an online survey to tell us how they felt about the PSP process once they had published their Top 10.
  • Research funding aimed at Mesothelioma PSP priorities

    Research funding aimed at Mesothelioma PSP priorities

    14 May 2019

    Read about the research that the British Lung Foundation and Mesothelioma UK are funding in the areas around mesothelioma that were agreed as most important by people affected and those who treat them.
  • Prioritising the research agenda for retention of participants in clinical trials: PRioRiTy II announces its results

    Prioritising the research agenda for retention of participants in clinical trials: PRioRiTy II announces its results

    12 March 2019

    Randomised clinical trials are the gold standard method for gathering evidence about health and care interventions. That said, randomised trials are not perfect, and many of them run into issues through the process of trial design and delivery. The PrioRiTy II work identified the most important questions to be answered about retention of participants in clinical trials.
  • Coeliac UK and Innovate UK announce £750k boost to research that unlocks important gluten free challenges highlighted by the PSP

    Coeliac UK and Innovate UK announce £750k boost to research that unlocks important gluten free challenges highlighted by the PSP

    20 February 2019

    Coeliac UK, the national charity that led the Coeliac JLA Priority Setting Partnership, has announced funding for research projects in areas highlighted by the PSP, in collaboration with Innovate UK, the UK’s innovation agency.