News and publications
15 January 2016One year ago today (15th January 2015), Marie Curie published the results of the Palliative and end of life care Priority Setting Partnership at the Palliative and end of life Care Research Summit in London.
03 December 2015We’re pleased to announce that the JLA is seeking an additional JLA Adviser to ensure that the growing demand for JLA Priority Setting Partnerships (PSPs) can be met.
17 November 2015A new Priority Setting Partnership (PSP) survey has opened, giving everyone affected by miscarriage and recurrent miscarriage the chance to submit their unanswered questions about the condition.
13 November 2015Autistica, as the UK’s largest autism research charity, is leading on the Autism PSP. We launched our consultation in May of this year and have since closed the survey, satisfied that responses adequately represented all key target groups.
10 November 2015This important process raises awareness about hair loss disorders and provides a positive direction for hair loss research, helping address the needs of the patients and the people who look after them.
06 November 2015The Womb Cancer PSP completed an on line survey at the end of May 2015 receiving nearly 800 responses from approximately 380 participants, of whom approximately half were patients or carers.
27 October 2015Marie Curie is launching its largest ever research call today in partnership with the Scottish Government Chief Scientist Office (CSO) and the Motor Neurone Disease Association (MND Association), totalling £1,425,000.
15 October 2015Hearing loss has a significant impact on interpersonal communication, psychological well-being, quality of life and economic independence (Olusanya et al, 2014).
14 October 2015In November 2014, the Hair loss PSP, funded by Alopecia UK and initiated by the British Hair and Nail Society, closed its initial on-line survey. We had 912 survey responders – 81 percent were completed by patients, or carers, and 12.6 percent by healthcare professionals or organisations.
08 October 2015Katherine Cowan, the JLA’s Senior Adviser, tells us about a paper suggesting that much of the research being done still doesn’t match what patients and clinicians want to see researched.
08 October 2015In 2014, we completed our JLA PSP, which set out to identify the top 10 research priorities for Parkinson’s. The process itself was a fairly daunting task but the real challenge has been how to take these priorities forward within the funding and research world.
01 October 2015Yesterday was the final day of the Royal College of Emergency Medicine’s annual conference, where Jason Smith gave a talk launching the Priority Setting Partnership (PSP) in Emergency Medicine.
24 September 2015In July 2014, the Childhood Disability Priority Setting Partnership (PSP) completed its mission to identify priorities for research into neurodisability in children.
24 September 2015A new EME Programme-funded study has recently got underway to test a treatment for keratoconus in children and young people.
Report from the JLA Symposium 23 June 2015. Learning from JLA Evaluations - Shaping Future JLA Methods
17 September 2015An opportunity to bring together people who have carried out evaluations of JLA methods and outcomes with a chance to learn and reflect on the experiences of more than a decade of priority setting.