News and publications

The top 10 research priorities for alcohol-related liver disease have been identified by a James Lind Alliance PSP, which was jointly funded by the NIHR and the British Society of Gastroenterology (BSG).

Dr Annmarie Nelson, of Marie Curie, explores the broader issues and concerns raised by patients, families and health professionals, which went beyond the priority research questions identified by the Palliative and end of life care PSP.

Catherine White, one of the new JLA Advisers, describes her personal journey into the world of medical research, and shares her initial insights into the JLA process.

Sandra Regan, JLA Adviser, brings together examples of how Twitter can be used effectively by Priority Setting Partnerships.

The National Institute for Health Research (NIHR) Horizon Scanning Research and Intelligence Centre (HSRIC), working with Fight for Sight, has identified 130 new and emerging technologies and procedures for treating corneal disorders.

Dr Emma Crosbie, who initiated the Womb Cancer Priority Setting Partnership, has won a NIHR media award for a film demonstrating how patients can help researchers decide on research priorities.

Sands has launched a call for applications to its Research Fund, with particular emphasis on the priorities from the PSP in Stillbirth.

A workshop for incontinence researchers is being organised in response to incontinence being an area of importance highlighted across different PSPs.

Can you help? We are inviting anyone affected by alcohol-related liver disease to help shape the research agenda.

The Alzheimer Society of Manitoba ran a focus group for their members, to help them to contribute to the Dementia (Canada) PSP.

The College of Optometrists has developed a report outlining the outcomes of the Visual Impairment and Dementia (VIDem) Summit.

The Canadian Dementia Priority Setting Partnership has just launched its questionnaire. Like every Priority Setting Partnership (PSP), we are hoping for responses from different groups and from across the country.

The PReSUTINeB study is now live, addressing the number four priority from the Spinal Cord Injury Priority Setting Partnership. By taking part, patients will be helping to improve understanding of Urinary Tract Infections and inform future treatment of this debilitating condition.

We’re delighted to announce that three new James Lind Alliance (JLA) Advisers have recently joined the team to help us work with the growing number of Priority Setting Partnerships (PSPs).

Many readers will already be familiar with the work of the University of Oxford Health Experiences Research Group (HERG) in conducting narrative research into people’s experiences of health and illness.