The PSP Steering Group
A PSP is led by a Steering Group.
The Steering Group coordinates the PSP and organises its activities. It must include representatives of patients and clinicians. These are often members of a charity or professional organisation within the area of the PSP. Members will bring with them knowledge of the condition, an understanding of the patient and clinician populations and access to networks of patients, carers and clinicians. Members will need to be fully engaged in the process and have the time to carry out the work involved.
The Steering Group is responsible for a number of tasks, including publicising the initiative, overseeing the checking and collating of uncertainties, and taking the final priorities to research funders. There are no set rules about how many people need to be on a PSP Steering Group. It is usually around 12 but may be larger or smaller. Too large and it becomes difficult to arrange and manage meetings and make decisions, too small and not all of the required people may be represented. It is usual for a Steering Group to meet either by teleconference or face to face on a monthly basis in order to keep momentum around the PSP and to maintain their relationship as a team.
What does the Steering Group commit to?
Members of the Steering Group will need to agree the resources (including time and expertise) that they will contribute to ensure that each stage of the process is completed. These stages include:
- publicising the initiative to potential partners
- publicising and participating in an initial awareness meeting
- participating in monthly Steering Group meetings/teleconferences
- developing and distributing information and forms to gather uncertainties
- collecting and collating uncertainties
- checking uncertainties against existing systematic reviews
- managing interim priority setting
- collating and aggregating interim prioritised uncertainties
- publicising and participating in the final priority setting exercise
- supplying the PSP’s working spreadsheet of uncertainties and the prioritised list of uncertainties from the final workshop to the JLA, for publication on the JLA website
- publicising the final top 10 uncertainties to the research community
- developing research questions from the agreed priorities and working with research funders where necessary to provide any extra information they need.
Steering Group members should be prepared to approach and utilise their established contacts and networks. They will be individuals who are able to listen to, respect and incorporate into the process different perspectives. They will be committed to the principle of shared priority setting as well as the values of fairness and transparency. These values underpin the culture of the JLA priority setting process and are equally embedded in the JLA Adviser’s approach. The Steering Group Terms of Reference (docx, 109.36 KB) document contains more information about what is expected of a Steering Group.