Chapter 13: Toolbox of key PSP documents

The following documents provide more useful information when planning a PSP.  They are also all available from the Templates and useful documents section of the JLA website.  Please check the website for new templates and useful documents which have been added.

Advice on using the JLA logo

Summary of setting up a PSP (pdf, 275.36 KB)

Flowchart of the PSP process (pdf, 35.04 KB)

PSP Key Roles and Competencies (pdf, 45.35 KB)

Also available from the Templates and useful documents section of the JLA website are the following templates which may be adapted for use by individual PSPs:

PSP Protocol (docx, 59.65 KB)

PSP Steering Group Terms of Reference (docx, 109.36 KB)

Declaration of Interests Form (docx, 59.74 KB)

Agreement for use of personal details in publicity (docx, 104.88 KB)

Summary of involvement for patients in a PSP Steering Group (docx, 48.82 KB)

Timeline of PSP activities (xlsx, 15.3 KB)

The following templates are particularly important when planning the data management of a PSP:

PSP Data Management Guide (pdf, 295.88 KB)

PSP Data Management Template (xlsx, 15.63 KB)

Examples of work done by previous PSPs

The Key Documents sections of many of the individual PSPs on the JLA website contain examples of the work they did.  Amongst these are: 

PSP Timetables – Acne, Alcohol-related Liver Disease, Bipolar

Initial awareness meeting agendas/invitations – Cleft Lip and Palate, Prostate CancerMesothelioma, Diabetes (Type 1)

First Steering Group meeting agenda – Miscarriage

Surveys – Cleft Lip and Palate, Eczema, Ear, Nose and Throat – Aspects of BalanceProstate Cancer, Diabetes (Type 1), Urinary Incontinence, Vitiligo, MesotheliomaAnaesthesia and Perioperative Care, Parkinson’s, Cavernoma, Sight Loss and Vision

Survey information sheets/invitations to participate – Diabetes (Type 1), Ear, Nose and Throat – Aspects of Balance

Communications plans – Dementia

Promotional activities – Dementia, Eczema, Pressure Ulcers, Alcohol-related Liver Disease, Sight Loss and Vision, Bipolar, Childhood Disability, Emergency Medicine,Inflammatory Bowel Disease, Stillbirth

Examples of combined questions – Cleft Lip and Palate

Interim surveys - Cleft Lip and Palate, Mesothelioma, Diabetes (Type 1), Anaesthesia and Perioperative Care, Multiple Sclerosis

Final workshop agendas - Schizophrenia, Mesothelioma, Vitiligo, Stroke in ScotlandSurgery for Common Shoulder Problems

Final workshop question cards - Cleft Lip and Palate, Schizophrenia, Vitiligo

Final workshop reports – Hip and Knee Replacement for Osteoarthritis, Preterm Birth

Reports of whole PSP process – Lyme Disease, Palliative and end of life care, Sight Loss and Vision, Stillbirth, Tinnitus, Mesothelioma

Pre-workshop ranking forms - Mild to Moderate Hearing Loss, Surgery for Common Shoulder Problems

Final workshop facilitator brief – Vitiligo

Final workshop group ranking form – Vitiligo

Final workshop individual ranking form - Vitiligo

These are examples of videos produced by PSPs

Intensive Care PSP
Emergency Medicine PSP
Palliative and end of life care PSP

These are examples of PSP Twitter feeds