Gathering uncertainties
Methods used (e.g. survey, focus groups, interviews): survey
| Number | % | |
| Total respondents (across all methods) | 594 | 100 |
| Total patients | 339 | 57 |
| Total caregivers | 73 | 12 |
| Total health and care professionals | 27 | 5 |
| Total other | 15 | 3 |
| Total not specified | 140 | 24 |
| Total number of original uncertainties submitted | 3042 | 100 |
| Original uncertainties in scope | 2742 | 90 |
| Original uncertainties out of scope | 300 | 10 |
Interim prioritisation
Methods used (eg survey, focus groups, interviews): survey
| Number | % | |
| Total number of indicative questions (answered & unanswered) | 66 | 100 |
| Number of verified answered questions | 7 | 15 |
| Number of verified unanswered questions | 59 | 85 |
| Number of verified unanswered questions included in the interim prioritisation | 45 | |
| Total respondents (across all methods) | 651 | 100 |
| Total patients | 442 | 68 |
| Total carergivers | 150 | 23 |
| Total health and care professionals | 35 | 5 |
| Total other | 22 | 3 |
| Total not specified | 2 | 0 |
| Number of questions taken to final workshop | 18 |
Final priority setting workshop
| Number | % | |
| Total participants*** | 23 | 100 |
| Total patients | 8 | 35 |
| Total caregivers | 6 | 26 |
| Total health and care professionals | 7 | 30 |
| Total caregivers/health care professionals | 2 | 9 |
Notes:
Examples of “Other:” family members of people with myeloma (who did not identify as a caregiver), people with related disorders such as MGUS (a precursor to myeloma).
In the first survey the question about role (i.e., patient, caregiver, health professional) was at the end of the survey resulting in a large proportion of missing data this was corrected for the second survey.